Friday, February 6, 2015

Harvoni / Hepatitis C

John has been taking the new Hepatitis C treatment, Harvoni, for one month.  The only side effect he has experienced is an occasional mild headache.  Managing this drug while on dialysis has been a bit confusing, as it is new territory for all involved--both John and the medical professionals.  HCV is a blood disease that affects the liver, so the prescribing doctor and manager of this treatment is in the Liver Center at BIDMC in Boston.  This medication is new, and they focus on the liver, which makes the complication of no kidney function and artificial filtration through dialysis a bit of a mystery to them.While taking Harvoni, blood work is done to monitor several variables.  One of them is kidney function.This measurement is horrifically bad for John.  This is not surprising, as he has no kidney function at all--but we had trouble communicating this to the liver center.  It's not as if he would lose any kidney function.  HE HAS NONE. They wanted him to stop taking the medication!

After a visit to Boston this week and some 'big picture' advice from our local nephrologist, we do have a plan of action. I have mentioned him before, but I don't know what we would do without this nephrologist.  He is brilliant.  John will continue to take the Harvoni.

The best news this week:  the blood work indicating how much of the HCV is active came back today.  The viral level is down to a trace:  barely detectable.  The medication is working!!

Happy weekend everyone!  Love to all!


  1. I was diagnosed with hepatitis C about 12 years ago. At first I was emotionally devastated My symptoms were bad and I just felt like I was going to die. My dentist didn't want to see me anymore when I told her that I had the virus, and my family reacted very badly. It was quite an effort, but I didn't give up. just few months ago i found a traditional healer in health forum who cured me with his herbal medicine, i only had the treatment for two weeks and everything was ok with me, i mean i was hundred percent ok. i'm so much exited that i got rid to hepatitis c out of my life. you have the email here attached to contact the traditional healer.

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