John has been taking the new Hepatitis C treatment, Harvoni, for one month. The only side effect he has experienced is an occasional mild headache. Managing this drug while on dialysis has been a bit confusing, as it is new territory for all involved--both John and the medical professionals. HCV is a blood disease that affects the liver, so the prescribing doctor and manager of this treatment is in the Liver Center at BIDMC in Boston. This medication is new, and they focus on the liver, which makes the complication of no kidney function and artificial filtration through dialysis a bit of a mystery to them.While taking Harvoni, blood work is done to monitor several variables. One of them is kidney function.This measurement is horrifically bad for John. This is not surprising, as he has no kidney function at all--but we had trouble communicating this to the liver center. It's not as if he would lose any kidney function. HE HAS NONE. They wanted him to stop taking the medication!
After a visit to Boston this week and some 'big picture' advice from our local nephrologist, we do have a plan of action. I have mentioned him before, but I don't know what we would do without this nephrologist. He is brilliant. John will continue to take the Harvoni.
The best news this week: the blood work indicating how much of the HCV is active came back today. The viral level is down to a trace: barely detectable. The medication is working!!
Happy weekend everyone! Love to all!